Showing posts with label IEP. Show all posts
Showing posts with label IEP. Show all posts

Monday, August 9, 2010

An Early Morning Stumble

After a rather early awakening this morning by a certain two-year-old, I found myself tossing and turning, trying unsuccessfully to go back to sleep. So, as I almost always do when battling insomnia, I got up and went to the computer.

As the new school year approaches, just thinking of Reiss attending public school gives me heart palpitations. School starts in four days and we are not even certain whether or not he will be going on to kindergarten within our school system. Yes, with there only being a matter of four days that separate us from now until the beginning of school, we should know if our child is going to start school and yes, most people - including other parents of children with autism - do know whether or not their child is going to go to school. However, we are not "most" people and "most" people do not have to deal with case conferences, IEP's, therapists, and assorted other things that make up the story behind why we do not know if our child will be attending kindergarten within the public school system. But that story is one for another time, not now.

Back to my heart palpitations and the anxiety causing them...

In the past few weeks, merely the thought of sending Reiss to public school darn near gives me a full-on anxiety attack. My mind races with news stories of children with autism being abused by teachers, disappearing from school, and of one autistic boy who even drowned in a school's pool. I think about how no one knows a child with autism like his own parents. I think about how I have tried to explain to one of my own relatives that my child does not comprehend danger and is often a "runner." I also recall the response received and it was not one that provided me reassurance of a total understanding of the problem. If I cannot get someone who is related to my child to "get" it, how on earth am I going to stress the importance of safety to a teacher - someone who is merely being paid to educate my child, not make sure for instance, that he comes back from the bathroom or eats only the food sent to school with him or does not have a meltdown because his pants got water on them or...or...or...?

It is all the "ors" that have brought homeschooling back to the forefront of my thoughts, so with not being able to sleep this morning, I began digging around (again) online for homeschool resources and specifically, for people who have children with autism who they homeschool. In doing so, I stumbled across Free Printable Fun, a fun little blog written by Jamie Sue, a crafty mom to a five-year-old boy with autism.

Jamie Sue does not post very often and from what I have read so far, I do not get the impression that she homeschools (but I could be wrong!) or that she uses the projects she posts as homeschool materials. Again, finding her site was simply a stumble for me that appeared when I Googled "homeschool autism resources." However, the content of her posts are valuable and the projects seem fun, even if they are not meant to be part of a structured homeschool curriculum - although some of them could be used in conjunction with other materials for that very purpose.

Tuesday, February 23, 2010

IEP's, Dinner For Dummies, and Other Ramblings

This evening my husband and I have a meeting to go to regarding the ABA center we are helping another couple get started. Actually, that makes it sound like we are playing some major role in the opening of a fabulous ABA facility but in reality, all we are doing is providing word of mouth to others in the autism community and a place for the couple to hold their presentations to get families interested in their center.

I'm very excited about it all but I'm also very tired. We have been going and going and going for around two weeks now and I just want a nap.

This morning was Reiss's case conference for his IEP and I gotta say, it wasn't nearly as bad as some of the nightmare stories I hear from friends who go in with a "team" of people ready to do battle. Of course, I don't have the same problems many of them have. We do have problems with Reiss running out of the classroom on occasion but luckily, it has not been out the door leading to the parking lot, but rather, the door leading out of his classroom and into the hall. We don't have problems - that I am aware of - with his teacher or aides giving him food that is not on his diet. And since we provide a box of snacks for him from home, they would have no reason to do so. We don't have problems with unfair punishments or have to deal with forms of discipline that some consider torture like so many parents of children with autism have to read about. Yes, it really happens...just look HERE if you don't believe me. By the way, that particular school system is notorious for incidents with their students in special services classrooms. Not long ago they also had one little girl with autism who was bitten in the classroom and force fed. I am, however, too lazy to go dig up a link for that as well though. So have at it, go Google yourself silly if you so desire.

Anyway, the only changes we made were to have Reiss's IEP written to include his dietary guidelines and his Diastat injector - just in case of another seizure - under the Health guidelines section. Because they have been having some behavioral problems in the classroom recently, there were also some behavioral modification plans made to accommodate for when Reiss fully rejects their current form of discipline, which is a combination of popsicle stick pocket pulls, 1-2-3 Magic, and timeouts. It sounds like a lot but it's basically 1-2-3 Magic adapted to a classroom setting. His teacher feels it is only effective for him a small part of the time and we will soon need to move on. It's amazing how this is exactly what she told me usually happens around mid-way through the year with the majority of the children, and although this is a little past midway, she was exactly right.

Moving on...

Today I made muffins. THIS is the recipe I used, as I often do. This recipe should have been more aptly name No-Fail Muffins or Muffins for Morons because it is so darn adaptable. These muffins simply cannot go wrong. They call for applesauce but I have also substituted the applesauce with bananas, zucchini, squash, and pumpkin, all with spectacular results. Today's applesauce sub was zucchini. They're so well-packed with good fats, proteins, and fiber that I don't even have an inkling of remorse serving these for a meal with a little fruit or something on the side. Because we have to get dinner on the table and out the door in a hurry this evening, we are having these muffins, some bacon, and whatever fruit we have on hand. I think there are some pears and apples that need to get gone, as well as some kiwis that Reiss will probably hoard all to himself.

Today we had carpet installed in our bedroom. I know, I know - don't tell me about all the harmful crap they put in that stuff. We purchased this carpet around a year ago when we had just begun making dietary changes, getting chemicals out of the house (we're still working on that one!), and frankly, we were just plain ignorant. If I knew then what I know now, we would have gone with running the wood laminate floors on into the bedroom or gone with a "green" carpet free of chemicals. What's the saying? Hindsight is 20/20 and considering the expense, it's not something we were going to just cut our losses and chalk up to experience.

After nearly a year straight of off and on (a lot of "on") people working on this or that in our house, I am ready to take a break. I am ready to close our doors and not have anyone work for us anytime soon. Ironically, we are getting ready to start our in-home ABA program and there will be people in and out of here every single day and for even more hours than all the remodeling projects put together but at least these are people working on a totally different aspect of our lives and not on our house and leaving messes in their wake when they leave for the day.

Thankfully, you can barely tell anymore that this is a 1974-built house. Other than the main bathroom, every room on this floor has been totally updated or had major modifications made to it to bring it into this decade from a decorative standpoint.

These monkeys are waking up from a nap. Reiss conked out on the chair in here during a phone call I was on earlier and Milla is on the couch. If you have read this far and are not bored to tears, I'm not sure whether to applaud your ability to focus or feel sorrow that you must have a really boring life that you could find my ramblings and my own mundane life ventures entertaining. At any rate, thank you for reading and leave a comment if you feel so inclined - I do read them and very much appreciate them, even if I don't acknowledge them as often as I would like.