As part of the preliminary requirements for DS to see the nearest DAN! (Defeat Autism Now!) doctor in our area, I attended a two hour informational seminar last night. The doctor, Dr. Mary Lou Hulseman, spoke for an hour and then took questions for the remainder of the time. Before going, honestly, I was harboring a bit of dread. Our son is already on a gluten-free and casein-free diet - as are all of us in our home - so I really did not look forward to sitting through an hour of listening to someone speak about something we have already put into practice. However, I was pleasantly surprised to hear about much more than just the diet and supplements used in the DAN! protocol. Dr. Mary Lou spoke of treatments I've never even heard of used in upping the defenses in autism patients' immune systems.
All that is the good news....now for the bad. Because there are only four (soon to be five) DAN! caregivers in the entire state of Indiana, one can only imagine the waiting list to get in to see any of these providers. Today I called for an initial appointment with Dr. Mary Lou and had to leave a message. A few hours later my call was returned, but only to inform me that the first available appointment is in October!!! Basically, we're on our own until then.
My part-time job continues: finding out everything I can about GFCF and supplementation for children with autism.
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