Saturday, July 31, 2010
Autism NI/Autism Ulster and its PAL
Sorry folks this is going to be a long one, so many issues involved here and in usual Northern Ireland style, the politics are confusing to the untrained eye. I will attempt to explain.
The Parent Autism Lobby (PAL) was launched in July 2009 by the charity Autism NI/Autism Ulster. (see page 3 here: www.autismni.org/news/ebulletinJulyAugust09.pdf. )
I am not sure why AutismNI/Autism Ulster felt the need to create a separate lobby group of its own existing members to separately represent parents. It could be that parents are not being heard within the charity. The Charity claims to have 18 branches across Northern Ireland, branches made up of parents. There are only 1.8 million people in Northern Ireland, so that is one branch per 100,000 people. The rate of autism in Northern Ireland is as yet unknown, but let's say it's 1 in 100. So each branch could serve a potential 1000 members. That's a lot of people, and a lot of voices. Why the need for PAL? Isn't AutismNI/AutismUlster providing a platform for all those voices?
The PAL group was formed at the same time as the launch of the new Northern Ireland Regional Autistic Spectrum Disorder Network (RASDN) in June 2009 www.northernireland.gov.uk/news/news-dhssps/news-dhssps-june-2009/news-dhssps-29062009-health-minister-launches.htm )
Until now, there has never been a province wide autism strategy like the RASDN. Previously, no one was working together. From reading about the RASDN (see link here: www.hscboard.hscni.net/ASD/ASD%20Aim%20objectives%20and%20membership.html )the cosy relationships between some voluntaries and the statutory might well be coming to an end.
It's not the voluntary sector's fault that much of the onus of delivering worthwhile services fell to some of them. The statutory sector abrogated their responsibilities to our kids long ago, preferring to just 'throw' money at the voluntary sector. What service does your child get that is being provided by a Trust that has been useful? Probably not much. Your child receives his/her diagnosis from the Trust (unless you had to go private due to waiting lists). That is usually where their help ends. What they do after that is up to them and as a parent, the maze one has to go to find and access useful help is abominable. Depending on where you live, what you know, and how vocal you are, you may or may not get what your child needs.
Thanks to a forward thinking Health Minister a new autism strategy for Northern Ireland was developed (see here: www.dhsspsni.gov.uk/asd-strategic-action-plan.pdf ) Presently, this strategy is being hammered out and will be rolled out across the province to establish standardised services, services that have been formed not only by medical and education personnel, but by parents and carers. I think this is probably unique within the UK and for Northern Ireland it is a huge step forward, one that has been a long time coming considering the dreadful state of affairs that have existed here regarding autism.
What has this got to do with PAL? Well, I am guessing (purely my opinion) that the powers that be at Autism NI/Autism Ulster (the largest autism charity in Northern Ireland, supported with Health & Social Services Trust funding ) wanted their 'voice' heard.
PAL, consisting of card carrying committee members of the AutismNI/Autism Ulster charity (for example - David Heatley, Vice Chair, Autism NI, and Anne Marie McCullough, AutismNI Belfast Chapter) quickly formed to present themselves as only 'parents'. I think, potentially, as only parents they might separately become members of the RASDN and more importantly, they could 'separately' lobby against it. These PAL members probably wouldn't be able to join the RASDN with their AutismNI hats on but they could do so if they were simply parents. Or maybe they formed PAL to create the illusion that they as parents, weren't happy with the RASDN. Possibly, they formed to bolster the illusion that parents are in support of Autism Legislation (Autism Act). PAL has publicly stated it supports legislation regarding autism repeatedly and across Northern Ireland.
In this regard, they (PAL and AutismNI) have continuously lobbied MLA's (mostly the DUP, notably ex MLA Iris Robinson) to the point where a motion was brought before Stormont on 28 June to launch an enquiry into the RASDN and it's work so far. See here for a transcript of those proceedings: ( http://www.niassembly.gov.uk/record/reports2009/100628.htm ) Scroll down 1/10th of the document to 'Private Members Business. This is pure and unadulterated politics.
In his opening statement, DUP MLA Jonathan Craig states, "That this Assembly calls on the Minister of Health, Social Services and Public Safety to instigate a review into the performance of the Regional Autistic Spectrum Disorder Network Group, including consideration of its appointment processes, independence, accountability, transparency, operating structures and competency...... "Autism NI also claims that the parent and carers representatives on the reference group were hand-picked by the chairperson to provide a positive response on behalf of the Department. Those are very serious accusations. In the best interests of public transparency, I commend the motion to the House."
I think perhaps MLA Craig's real reasons behind the motion are made clear later in his opening remarks when he says, "This issue is not about party politics. Some may want to use that ploy to deflect attention from the real issue. It is about how autism sufferers and the groups that represent them can be best served and represented. Furthermore, it is not about raising up old debates about whether there should be legislation. We are talking about accountability, which is getting to the core of what democracy and transparency are. How best can we serve and represent the people at the heart of the issue?"
Actually Mr Craig, the debate was exactly about those things you deny, and nothing else! Attention is drawn to your argument by your denial that those matters are the heart of the said debate. I am no expert in pseudosciences like psychology, but if you are about to reprimand your child and s/he beats you to it by blurting out, "I didn't touch the biscuits or the sweeties mummy", there is a pretty good chance that is exactly what Jimmy or Jane did.
One would have thought that a charity alleging the representation of so many families and individuals in Northern Ireland would welcome the RASDN and the opportunity for parents, all parents to be part of a process that in the past, had been closed to them. From what I have read about the Network, all of the members are considered equal and have an equal say in what is going to happen regarding autism in Northern Ireland.
Parents know what their children need and certainly the individuals who actually have autism know this, seeing as autism is a part of them, and also due to the fact they live in 'the system'.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Following MLA Craig's opening remarks, Michelle ONeill (Sinn Fein) piped in with her own opinions. She says, "Members will have received a briefing paper from PAL, which is the parents’ autism lobby. From reading that document, it is clear that parents and carers do not have any faith in the newly established Regional Autistic Spectrum Disorder Network Group."
I personally would love to see that briefing 'paper'. If anyone knows how to obtain a copy or has a copy let me know!
Who are these parents/carers Ms O'Neill refers to? One or two, four or five? Who? How is it, that an obscure group that no one has even heard about, gets the opportunity to submit papers to Stormont, papers that can cause such a furore? If you or I started a wee group, would we get such attention?
Anyway, here starts a circular argument. PAL is synonymous with AutismNI/Autism Ulster. PAL's members are also members of AutismNI/Autism Ulster. So basically Ms O'Neill is stating that it's AutismNI/Autism Ulster that is doing the bellowing. There is no 'PAL' per se. As a parent I am delighted that there are parents involved in this strategy and that everyone seems to be working together.
PAL does not represent parents and carers, except those that are within AutismNI/AutismUlster. They certainly don't represent me and there are thousands of parents, carers and individuals in Northern Ireland who have never even heard of PAL and who are not members of AutismNI/AutismUlster. Ms O'Neill goes on..."Parents participating with the network are already reporting consultation fatigue and feel that they are not seeing the outcomes that they wish to see." Do these parents 'feel' this, 'believe' this, or 'know' this? Did those same parents ask AutismNI/Autism Ulster, the largest autism charity in Northern Ireland why nothing much has happened here in the past 20 years?
AutismNI/AutismUlster celebrated its 20 year anniversary recently, and from what I can see, the state of affairs regarding autism in Northern Ireland hasn't changed much. Who is actually to blame here? AutismNI/AutismUlster picked up the gauntlet of providing autism support and services, and they did so with lots of government money and support so who is really accountable for the mess? If AutismNI/AutismUlster wants the 'glory', they also have to have the 'guts' to admit their culpability in the mess.
Anyway, back to 'consultation fatigue.' What is that? I have NEVER been consulted regarding any services my children have received. For sure, I have been offered a few crumbs here and there, but consulted? Consultation with parents regarding services does not exist in Northern Ireland, not with parents anyway. The breadth of this comment is so earth shatteringly patronising.
Many of the parents I know are crying out for opportunities to be heard. Some of them write books, some of them write blogs (like me) just to be 'heard'. No one is listening. How many times have you been patronised by some so-called professional about your child, and about the 'complexity' (translate - no money) of his or her condition. How many times have you been offered tea and sympathy instead of answers by some of the autism 'charities'? If anyone came to me and actually asked for my opinion, I think I would faint with shock. If you are reading this Ms O'Neill, please explain to me the beliefs upon which you make such interesting conclusions, because you have absolutely no facts to base them on. Pure conjecture. Clearly, AutismNI/AutismUlster lobbyists have been successful where you are concerned. In my opinion, the free junket to Washington (2007) you received, paid for by AutismNI/Autism Ulster may have sweetened the pot for you as well, regarding your 'support' for the charity. (see www.niassembly.gov.uk/health/2007mandate/press/PNHSSPS12_07.htm.
Ms O'Neill's comments about consultation 'fatigue' were parroted from page 17 of this document prepared by AutismNI/Autism Ulster - (www.autismni.org/10708%20Autism%20NI%20Report.pdf ) No facts here I am afraid. Sinn Fein, not particularly known for 'independent thinking' probably works very well for AutismNI/AutismUlster. I despair of our MLA's that they voluntarily offer themselves up as political pawns. Have the likes of Michelle O'Neill et al even read a recent research paper? Do they consult with anyone outside of 'parochial' Northern Ireland? No wonder we are so insular and provincial. I digress.
Back to this document prepared by AutismNI/AutismUlster. It is a self congratulatory essay on how wonderful the charity is. It describes the RASDN and other autism related projects as 'knee jerk' and states that, "By 2010 parents of children with ASD have been ‘consulted out’. There is a feeling of research fatigue and many parents are critical at the slowness of Health and Social Care and Education to think, act and respond strategically and in unison to the needs of individuals with ASD. "
Well, AutismNI/AutismUlster, you have had 20 years to change that, but you didn't.
I do have to give it to AutismNI/Autism Ulster though. It does its lobbying work so well that politically opposed parties like Sinn Fein and the DUP actually agree on something. Jonathan Craig and Michelle O'Neill are on the same page here. Wow!
Maybe the charity could expand its lobbying work to be an all party arbitrator on other issues in Northern Ireland? Maybe AutismNI/Autism Ulster should address policing and sectarian issues. Of course, they are on the same 'page' because they all want the 'kudos' involved in bringing forth an autism act into Northern Ireland. For some reason these people think that a law outlining the rights of persons with autism would be a good thing. If you talk to people who have disabilities other than autism you will soon find out that such an act would be an affront and ultimately damaging to anyone with a disability. The politicians aren't listening to the parents whose children have rare disorders or whose children have conditions like muscular dystrophy or cerebal palsy. Where is their 'act'?
Ultimately, i believe an autism act would damage my child. Section 75 of the Disability Act is more than sufficient for my child. Again, very little thought has gone on here, it's pure politics and many politicians want a piece of the autism 'cake'. They need to be seen to be doing something, anything, just to get on the autism band wagon. The phrase coined by the republican movement can be inserted here in that people with autism, 'haven't gone away you know'. Quite the opposite in fact and many more voters in the future will have autism in their lives. Politicians want to appear 'caring' about the condition now, to ensure they get those votes. Pity they are so misdirected.
Another reason why the DUP and Sinn Fein are together on this issue, is down to only one thing, they want your votes. I do believe that generally people are good and want to do good. In this instance, however, MLA's have been duped. These MLA's might presume that AutismNI/AutismUlster too, must be a 'good' charity. After all it is very vocal, has lots of staff, has political influence, and in the past had lots of money given to it by Trusts and by its membership. Does that mean there is proof that it does good work? Compared to what? How do we measure 'good'?
We, in Northern Ireland, are still the 'poor cousin' compared to the rest of the UK regarding autism. The very fact we are only getting a joined up strategy now, thanks to the RASDN, says it all. What has AutismNI/AutismUlster or any other charity working with autism been doing for 20 years?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
It seems that AutismNI/AutismUlster brokered a 'deal' between itself, the government and the National Autistic Society (NAS) to keep the NAS out of Northern Ireland. See here:
www.autismni.org/about/history.asp (retrieved on 30 July 2010) from the charity's 'our history page. It states that in the year 2000, "The National Autistic Society (U.K) set up a duplicate service to Autism NI in N.I breaking an earlier partnership agreement. An enquiry was launched by the NAS Board and Autism N.I’s complaint was upheld. The NAS withdrew the following year due to funding difficulties in England." (whatever that means) Apart from airing their dirty laundry in public on the website, the charity looks much more like a business and its inventory includes you and your kids!
It appears that having exclusive access to you and your child was part of the 'bargain'. The NAS, a charity with 40 years experience providing a wealth of information and advice to parents and individuals was stopped from setting up here in Northern Ireland. They did not provide a 'duplicate' service, they would have provided a service, full stop. Check out their website here: www.autism.org.uk/about-autism/autism-library.aspx This is the NAS' 'library of autism resources. It's immense. Does AutismNI/Autism Ulster claim that the NAS is a duplicate service?
Take a look at the rest of the NAS website, particularly their research. It would take days and days to get through all the helpful information, the studies, the projects, the schools, the support networks. Takes about half an hour to get through the website of AutismNI/Autism Ulster. What do they actually do?
They are vocal, but the real issues here in Northern Ireland regarding our children remain untouched by them. A prime example of useless and worthless information lies in AutismNI/AutismUlster's 'links' page. (see here: http://autismni.org/familysupport/links.asp. When you open up all five of the 'further reading' links, on their website, one of them is 'for sale' and another is a 'casino' site. Another of them provides about six pieces of information from an american parent. The other two, one of which is under construction are both selling something. With millions, maybe billions of links to choose from, is this the best a charity with 20 years experience, can do for you? Where are the links to the NAS or to the locally based 'Aspergers Network'? Why bother at all?
Are you raising funds for PAL and AutismNI/Autism Ulster? Your money, in my opinion, certainly is not being used for awareness raising or website design. My own blog has more links to good information than this 20 year old charity, a charity that has been funded for years with public money. I don't 'like' charities that purport to help but in fact hinder vulnerable children like my own, as well as their families. I don't see that AutismNI/AutismUlster is about empowering families or informing parents. I don't see it campaigning for mental health services, or intervention choices. What I see is a charity more interested in fundraising than anything else.
The motion at Stormont was reprehensible. It was an assault on my common sense to read the transcript. The reasoning behind the move to 'take it to Stormont' is clear in David Heatley's comments to the Belfast Telegraph on 28 June when he said, "We view the action plan as a huge missed opportunity and misuse of resources. It provides convincing evidence that only with autism legislation, which is currently being drafted by the Assembly, will come the requirement for joined-up planning across government departments and the recognition of autism as a disability within the terms of the disability discrimination act".see: www.newsletter.co.uk/news/Assembly-to-debate-39insufficient39-autism.6387183.jp .
PAL and AutismNI/Autism Ulster have one objective, to steam roll an Autism Act in Northern Ireland. The two organisations are one and the same, their goals are one and the same.
To the RASDN, I applaud you all. For once, in Northern Ireland, things might be moving. Who is it that is not happy with that? - the biggest autism charity. Something clearly not right with that picture. Northern Ireland desperately needs a strategy!
With the current financial crisis, Health Trusts are going to ground in terms of their spending. I don't think there are many disability charities in Northern Ireland who received the kind of funding that AutismNI/Autism Ulster did. The autism gravy train has stopped and all of the charities, including AutismNI/Autism Ulster will have to find other ways to make their money and keep their staff on wages they are accustomed to.
Unlike the tea and sympathy I have been offered so many times by those individuals/groups purporting to offer help to me and my children, I couldn't muster returning that favour to PAL/AutismNI/AutismUlster. So much needs to be done in Northern Ireland for our children and their future and it hasn't happened. Change is well overdue.
As for the DUP and Sinn Fein, I was under the impression that as political representatives they are elected to represent their constituents, not charities.
"Affluence means influence"
Jack London
and another.....
If it talks like a duck, walks like a duck, it's a duck.
The Parent Autism Lobby (PAL) was launched in July 2009 by the charity Autism NI/Autism Ulster. (see page 3 here: www.autismni.org/news/ebulletinJulyAugust09.pdf. )
I am not sure why AutismNI/Autism Ulster felt the need to create a separate lobby group of its own existing members to separately represent parents. It could be that parents are not being heard within the charity. The Charity claims to have 18 branches across Northern Ireland, branches made up of parents. There are only 1.8 million people in Northern Ireland, so that is one branch per 100,000 people. The rate of autism in Northern Ireland is as yet unknown, but let's say it's 1 in 100. So each branch could serve a potential 1000 members. That's a lot of people, and a lot of voices. Why the need for PAL? Isn't AutismNI/AutismUlster providing a platform for all those voices?
The PAL group was formed at the same time as the launch of the new Northern Ireland Regional Autistic Spectrum Disorder Network (RASDN) in June 2009 www.northernireland.gov.uk/news/news-dhssps/news-dhssps-june-2009/news-dhssps-29062009-health-minister-launches.htm )
Until now, there has never been a province wide autism strategy like the RASDN. Previously, no one was working together. From reading about the RASDN (see link here: www.hscboard.hscni.net/ASD/ASD%20Aim%20objectives%20and%20membership.html )the cosy relationships between some voluntaries and the statutory might well be coming to an end.
It's not the voluntary sector's fault that much of the onus of delivering worthwhile services fell to some of them. The statutory sector abrogated their responsibilities to our kids long ago, preferring to just 'throw' money at the voluntary sector. What service does your child get that is being provided by a Trust that has been useful? Probably not much. Your child receives his/her diagnosis from the Trust (unless you had to go private due to waiting lists). That is usually where their help ends. What they do after that is up to them and as a parent, the maze one has to go to find and access useful help is abominable. Depending on where you live, what you know, and how vocal you are, you may or may not get what your child needs.
Thanks to a forward thinking Health Minister a new autism strategy for Northern Ireland was developed (see here: www.dhsspsni.gov.uk/asd-strategic-action-plan.pdf ) Presently, this strategy is being hammered out and will be rolled out across the province to establish standardised services, services that have been formed not only by medical and education personnel, but by parents and carers. I think this is probably unique within the UK and for Northern Ireland it is a huge step forward, one that has been a long time coming considering the dreadful state of affairs that have existed here regarding autism.
What has this got to do with PAL? Well, I am guessing (purely my opinion) that the powers that be at Autism NI/Autism Ulster (the largest autism charity in Northern Ireland, supported with Health & Social Services Trust funding ) wanted their 'voice' heard.
PAL, consisting of card carrying committee members of the AutismNI/Autism Ulster charity (for example - David Heatley, Vice Chair, Autism NI, and Anne Marie McCullough, AutismNI Belfast Chapter) quickly formed to present themselves as only 'parents'. I think, potentially, as only parents they might separately become members of the RASDN and more importantly, they could 'separately' lobby against it. These PAL members probably wouldn't be able to join the RASDN with their AutismNI hats on but they could do so if they were simply parents. Or maybe they formed PAL to create the illusion that they as parents, weren't happy with the RASDN. Possibly, they formed to bolster the illusion that parents are in support of Autism Legislation (Autism Act). PAL has publicly stated it supports legislation regarding autism repeatedly and across Northern Ireland.
In this regard, they (PAL and AutismNI) have continuously lobbied MLA's (mostly the DUP, notably ex MLA Iris Robinson) to the point where a motion was brought before Stormont on 28 June to launch an enquiry into the RASDN and it's work so far. See here for a transcript of those proceedings: ( http://www.niassembly.gov.uk/record/reports2009/100628.htm ) Scroll down 1/10th of the document to 'Private Members Business. This is pure and unadulterated politics.
In his opening statement, DUP MLA Jonathan Craig states, "That this Assembly calls on the Minister of Health, Social Services and Public Safety to instigate a review into the performance of the Regional Autistic Spectrum Disorder Network Group, including consideration of its appointment processes, independence, accountability, transparency, operating structures and competency...... "Autism NI also claims that the parent and carers representatives on the reference group were hand-picked by the chairperson to provide a positive response on behalf of the Department. Those are very serious accusations. In the best interests of public transparency, I commend the motion to the House."
I think perhaps MLA Craig's real reasons behind the motion are made clear later in his opening remarks when he says, "This issue is not about party politics. Some may want to use that ploy to deflect attention from the real issue. It is about how autism sufferers and the groups that represent them can be best served and represented. Furthermore, it is not about raising up old debates about whether there should be legislation. We are talking about accountability, which is getting to the core of what democracy and transparency are. How best can we serve and represent the people at the heart of the issue?"
Actually Mr Craig, the debate was exactly about those things you deny, and nothing else! Attention is drawn to your argument by your denial that those matters are the heart of the said debate. I am no expert in pseudosciences like psychology, but if you are about to reprimand your child and s/he beats you to it by blurting out, "I didn't touch the biscuits or the sweeties mummy", there is a pretty good chance that is exactly what Jimmy or Jane did.
One would have thought that a charity alleging the representation of so many families and individuals in Northern Ireland would welcome the RASDN and the opportunity for parents, all parents to be part of a process that in the past, had been closed to them. From what I have read about the Network, all of the members are considered equal and have an equal say in what is going to happen regarding autism in Northern Ireland.
Parents know what their children need and certainly the individuals who actually have autism know this, seeing as autism is a part of them, and also due to the fact they live in 'the system'.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Following MLA Craig's opening remarks, Michelle ONeill (Sinn Fein) piped in with her own opinions. She says, "Members will have received a briefing paper from PAL, which is the parents’ autism lobby. From reading that document, it is clear that parents and carers do not have any faith in the newly established Regional Autistic Spectrum Disorder Network Group."
I personally would love to see that briefing 'paper'. If anyone knows how to obtain a copy or has a copy let me know!
Who are these parents/carers Ms O'Neill refers to? One or two, four or five? Who? How is it, that an obscure group that no one has even heard about, gets the opportunity to submit papers to Stormont, papers that can cause such a furore? If you or I started a wee group, would we get such attention?
Anyway, here starts a circular argument. PAL is synonymous with AutismNI/Autism Ulster. PAL's members are also members of AutismNI/Autism Ulster. So basically Ms O'Neill is stating that it's AutismNI/Autism Ulster that is doing the bellowing. There is no 'PAL' per se. As a parent I am delighted that there are parents involved in this strategy and that everyone seems to be working together.
PAL does not represent parents and carers, except those that are within AutismNI/AutismUlster. They certainly don't represent me and there are thousands of parents, carers and individuals in Northern Ireland who have never even heard of PAL and who are not members of AutismNI/AutismUlster. Ms O'Neill goes on..."Parents participating with the network are already reporting consultation fatigue and feel that they are not seeing the outcomes that they wish to see." Do these parents 'feel' this, 'believe' this, or 'know' this? Did those same parents ask AutismNI/Autism Ulster, the largest autism charity in Northern Ireland why nothing much has happened here in the past 20 years?
AutismNI/AutismUlster celebrated its 20 year anniversary recently, and from what I can see, the state of affairs regarding autism in Northern Ireland hasn't changed much. Who is actually to blame here? AutismNI/AutismUlster picked up the gauntlet of providing autism support and services, and they did so with lots of government money and support so who is really accountable for the mess? If AutismNI/AutismUlster wants the 'glory', they also have to have the 'guts' to admit their culpability in the mess.
Anyway, back to 'consultation fatigue.' What is that? I have NEVER been consulted regarding any services my children have received. For sure, I have been offered a few crumbs here and there, but consulted? Consultation with parents regarding services does not exist in Northern Ireland, not with parents anyway. The breadth of this comment is so earth shatteringly patronising.
Many of the parents I know are crying out for opportunities to be heard. Some of them write books, some of them write blogs (like me) just to be 'heard'. No one is listening. How many times have you been patronised by some so-called professional about your child, and about the 'complexity' (translate - no money) of his or her condition. How many times have you been offered tea and sympathy instead of answers by some of the autism 'charities'? If anyone came to me and actually asked for my opinion, I think I would faint with shock. If you are reading this Ms O'Neill, please explain to me the beliefs upon which you make such interesting conclusions, because you have absolutely no facts to base them on. Pure conjecture. Clearly, AutismNI/AutismUlster lobbyists have been successful where you are concerned. In my opinion, the free junket to Washington (2007) you received, paid for by AutismNI/Autism Ulster may have sweetened the pot for you as well, regarding your 'support' for the charity. (see www.niassembly.gov.uk/health/2007mandate/press/PNHSSPS12_07.htm.
Ms O'Neill's comments about consultation 'fatigue' were parroted from page 17 of this document prepared by AutismNI/Autism Ulster - (www.autismni.org/10708%20Autism%20NI%20Report.pdf ) No facts here I am afraid. Sinn Fein, not particularly known for 'independent thinking' probably works very well for AutismNI/AutismUlster. I despair of our MLA's that they voluntarily offer themselves up as political pawns. Have the likes of Michelle O'Neill et al even read a recent research paper? Do they consult with anyone outside of 'parochial' Northern Ireland? No wonder we are so insular and provincial. I digress.
Back to this document prepared by AutismNI/AutismUlster. It is a self congratulatory essay on how wonderful the charity is. It describes the RASDN and other autism related projects as 'knee jerk' and states that, "By 2010 parents of children with ASD have been ‘consulted out’. There is a feeling of research fatigue and many parents are critical at the slowness of Health and Social Care and Education to think, act and respond strategically and in unison to the needs of individuals with ASD. "
Well, AutismNI/AutismUlster, you have had 20 years to change that, but you didn't.
I do have to give it to AutismNI/Autism Ulster though. It does its lobbying work so well that politically opposed parties like Sinn Fein and the DUP actually agree on something. Jonathan Craig and Michelle O'Neill are on the same page here. Wow!
Maybe the charity could expand its lobbying work to be an all party arbitrator on other issues in Northern Ireland? Maybe AutismNI/Autism Ulster should address policing and sectarian issues. Of course, they are on the same 'page' because they all want the 'kudos' involved in bringing forth an autism act into Northern Ireland. For some reason these people think that a law outlining the rights of persons with autism would be a good thing. If you talk to people who have disabilities other than autism you will soon find out that such an act would be an affront and ultimately damaging to anyone with a disability. The politicians aren't listening to the parents whose children have rare disorders or whose children have conditions like muscular dystrophy or cerebal palsy. Where is their 'act'?
Ultimately, i believe an autism act would damage my child. Section 75 of the Disability Act is more than sufficient for my child. Again, very little thought has gone on here, it's pure politics and many politicians want a piece of the autism 'cake'. They need to be seen to be doing something, anything, just to get on the autism band wagon. The phrase coined by the republican movement can be inserted here in that people with autism, 'haven't gone away you know'. Quite the opposite in fact and many more voters in the future will have autism in their lives. Politicians want to appear 'caring' about the condition now, to ensure they get those votes. Pity they are so misdirected.
Another reason why the DUP and Sinn Fein are together on this issue, is down to only one thing, they want your votes. I do believe that generally people are good and want to do good. In this instance, however, MLA's have been duped. These MLA's might presume that AutismNI/AutismUlster too, must be a 'good' charity. After all it is very vocal, has lots of staff, has political influence, and in the past had lots of money given to it by Trusts and by its membership. Does that mean there is proof that it does good work? Compared to what? How do we measure 'good'?
We, in Northern Ireland, are still the 'poor cousin' compared to the rest of the UK regarding autism. The very fact we are only getting a joined up strategy now, thanks to the RASDN, says it all. What has AutismNI/AutismUlster or any other charity working with autism been doing for 20 years?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
It seems that AutismNI/AutismUlster brokered a 'deal' between itself, the government and the National Autistic Society (NAS) to keep the NAS out of Northern Ireland. See here:
www.autismni.org/about/history.asp (retrieved on 30 July 2010) from the charity's 'our history page. It states that in the year 2000, "The National Autistic Society (U.K) set up a duplicate service to Autism NI in N.I breaking an earlier partnership agreement. An enquiry was launched by the NAS Board and Autism N.I’s complaint was upheld. The NAS withdrew the following year due to funding difficulties in England." (whatever that means) Apart from airing their dirty laundry in public on the website, the charity looks much more like a business and its inventory includes you and your kids!
It appears that having exclusive access to you and your child was part of the 'bargain'. The NAS, a charity with 40 years experience providing a wealth of information and advice to parents and individuals was stopped from setting up here in Northern Ireland. They did not provide a 'duplicate' service, they would have provided a service, full stop. Check out their website here: www.autism.org.uk/about-autism/autism-library.aspx This is the NAS' 'library of autism resources. It's immense. Does AutismNI/Autism Ulster claim that the NAS is a duplicate service?
Take a look at the rest of the NAS website, particularly their research. It would take days and days to get through all the helpful information, the studies, the projects, the schools, the support networks. Takes about half an hour to get through the website of AutismNI/Autism Ulster. What do they actually do?
They are vocal, but the real issues here in Northern Ireland regarding our children remain untouched by them. A prime example of useless and worthless information lies in AutismNI/AutismUlster's 'links' page. (see here: http://autismni.org/familysupport/links.asp. When you open up all five of the 'further reading' links, on their website, one of them is 'for sale' and another is a 'casino' site. Another of them provides about six pieces of information from an american parent. The other two, one of which is under construction are both selling something. With millions, maybe billions of links to choose from, is this the best a charity with 20 years experience, can do for you? Where are the links to the NAS or to the locally based 'Aspergers Network'? Why bother at all?
Are you raising funds for PAL and AutismNI/Autism Ulster? Your money, in my opinion, certainly is not being used for awareness raising or website design. My own blog has more links to good information than this 20 year old charity, a charity that has been funded for years with public money. I don't 'like' charities that purport to help but in fact hinder vulnerable children like my own, as well as their families. I don't see that AutismNI/AutismUlster is about empowering families or informing parents. I don't see it campaigning for mental health services, or intervention choices. What I see is a charity more interested in fundraising than anything else.
The motion at Stormont was reprehensible. It was an assault on my common sense to read the transcript. The reasoning behind the move to 'take it to Stormont' is clear in David Heatley's comments to the Belfast Telegraph on 28 June when he said, "We view the action plan as a huge missed opportunity and misuse of resources. It provides convincing evidence that only with autism legislation, which is currently being drafted by the Assembly, will come the requirement for joined-up planning across government departments and the recognition of autism as a disability within the terms of the disability discrimination act".see: www.newsletter.co.uk/news/Assembly-to-debate-39insufficient39-autism.6387183.jp .
PAL and AutismNI/Autism Ulster have one objective, to steam roll an Autism Act in Northern Ireland. The two organisations are one and the same, their goals are one and the same.
To the RASDN, I applaud you all. For once, in Northern Ireland, things might be moving. Who is it that is not happy with that? - the biggest autism charity. Something clearly not right with that picture. Northern Ireland desperately needs a strategy!
With the current financial crisis, Health Trusts are going to ground in terms of their spending. I don't think there are many disability charities in Northern Ireland who received the kind of funding that AutismNI/Autism Ulster did. The autism gravy train has stopped and all of the charities, including AutismNI/Autism Ulster will have to find other ways to make their money and keep their staff on wages they are accustomed to.
Unlike the tea and sympathy I have been offered so many times by those individuals/groups purporting to offer help to me and my children, I couldn't muster returning that favour to PAL/AutismNI/AutismUlster. So much needs to be done in Northern Ireland for our children and their future and it hasn't happened. Change is well overdue.
As for the DUP and Sinn Fein, I was under the impression that as political representatives they are elected to represent their constituents, not charities.
"Affluence means influence"
Jack London
and another.....
If it talks like a duck, walks like a duck, it's a duck.
Friday, July 30, 2010
Demise of the Summer Scheme - Apathy
In the last two years, the local summer schemes my son attended have both closed down. Their closure was not down to funding, but rather down to lack of interest. The funding was there, the kids were not.
The summer scheme my son attended this year had to end 2 days early. Out of the 20 parents who originally agreed to send their children to the scheme two weeks ago, only eight weighed in with their children. The scheme was excellent, the staff were motivated, fun and excited to work with a full compliment of children who had a range of abilities. The premises were safe, the activities were well structured and varied and the scheme was run in a high density area of population. It was assumed it would be fully subscribed and it was. Problem is 12 parents who signed up didn't bother to show up with their children.
The news was awash with stories of summer schemes for 'special' kid losing their funding. This was not the case where I live. The summer scheme that parents were complaining about most vociferously was in the Down area and was actually a finite program that was going to end anyway. Where I live there were numerous summer schemes available for my child that were inclusive. Due to lack of attendance, I doubt many of them will be there next year.
Two years in a row this has happened to my child. A scheme my child attended last year closed down a week early for the same reason - apathy. The two week scheme my child attended this year made a huge difference to him. He emerged after two weeks a different child, more social, more language and with more skills. I am sure if he had the chance of a four or even eight week scheme he would have gained many more skills and confidence. You 12 parents out there who decided not to bother to send your child to this particular scheme - what was your child doing for those two weeks? Where my child was making new friends, and engaging in art and music, cooking and learning how to play ball games, and use a computer, what was your child doing?
I have asked the leaders of the scheme for the names and phone numbers of all the parents who originally signed their children up to this scheme, many of whom have children on the autistic spectrum. Obviously the Leader isn't going to divulge that information. But, I want to ask those parents personally why they opted out. Why did they take up places and not avail of them? They prevented other children from benefitting from the scheme. Essentially, they ruined it for everyone else. No scheme next year. Ta very much!
The apathy I have seen both this year and last year by parents regarding summer schemes, particularly inclusive summer schemes has been a severe detriment to my own child. My son needs to have children to play with over the summer. I can buy a lot of things, but I cannot 'buy' children to play with him, to interact with him. Summer schemes are crucial for his continued development. Neurotypical children have all kinds of opportunities for play and interaction both during the school year and outside of it. Other children do not seek my child out to play with him. His language is delayed, his playskills are only just emerging. Kids generally don't want to know him. Watching him at his summer scheme, however, playing tag and interacting with kids of all ages made my heart soar. The fact that you parents out there (all 12 of you) who decided not to send your children to the scheme has left me feeling confused and angry. I echo my son's words to you - 'no more summer scheme mummy?'
When this particular scheme is not available next year, you 12 parents will no doubt harangue and scream at how your children's needs aren't being met over the summer. If you do, I will be there too, reminding you of your apathy.
Victimhood doesn't work with ASD. Action does. There are many many parents and carers in Northern Ireland who are fighting tooth and nail against this kind of apathy and all the forces out there that keep our children in limbo. I wonder if your voices are part of these. If so, you do a disservice to those parents and carers and invididuals who are actually doing something. Actions speak louder than words and this time, all 12 of you let all of us down.
I propose that summer schemes start charging parents in advance. £50.00 per week should suffice - non-refundable. Funders of these schemes need accountability. Without it, they won't fund. Why would they? Why should precious money be wasted? It's time that some parents acknowledge their tacit participation and contribution to the 'problems' our kids and their families face regarding the issues surrounding having a child on the autistic spectrum.
I fear that across Northern Ireland, there are a lot more than just '12' parents. I suspect a lot of parents conjure up all kinds of excuses for not engaging with what is out there preferring to tar it all with the same brush. Unless we know and experience what is available, how can we make it better? Who will listen to your voice and your child's voice if you don't have the experience of participation?
I hear parents complaining all the time about what there is, or is not available for their child. It is so easy to complain - it is not easy to get your hands 'dirty' and do the work yourself required to change things. Try and fund raise £2,000 per week to run a summer scheme and come to tell me how 'easy' it was. Guaranteed, if parents had to fundraise for summer schemes themselves, their children would definitely be in attendance.
Maybe next June when it is announced this summer scheme and others are no longer available, the unemployed Leader of the scheme will point out to me the names of you 12 parents as you 'demand' more services. I will ask my son to remind you that 'you did it' and get him to ask you 'why?'
To quote the old saying, 'empty vessels make the most noise'.
The summer scheme my son attended this year had to end 2 days early. Out of the 20 parents who originally agreed to send their children to the scheme two weeks ago, only eight weighed in with their children. The scheme was excellent, the staff were motivated, fun and excited to work with a full compliment of children who had a range of abilities. The premises were safe, the activities were well structured and varied and the scheme was run in a high density area of population. It was assumed it would be fully subscribed and it was. Problem is 12 parents who signed up didn't bother to show up with their children.
The news was awash with stories of summer schemes for 'special' kid losing their funding. This was not the case where I live. The summer scheme that parents were complaining about most vociferously was in the Down area and was actually a finite program that was going to end anyway. Where I live there were numerous summer schemes available for my child that were inclusive. Due to lack of attendance, I doubt many of them will be there next year.
Two years in a row this has happened to my child. A scheme my child attended last year closed down a week early for the same reason - apathy. The two week scheme my child attended this year made a huge difference to him. He emerged after two weeks a different child, more social, more language and with more skills. I am sure if he had the chance of a four or even eight week scheme he would have gained many more skills and confidence. You 12 parents out there who decided not to bother to send your child to this particular scheme - what was your child doing for those two weeks? Where my child was making new friends, and engaging in art and music, cooking and learning how to play ball games, and use a computer, what was your child doing?
I have asked the leaders of the scheme for the names and phone numbers of all the parents who originally signed their children up to this scheme, many of whom have children on the autistic spectrum. Obviously the Leader isn't going to divulge that information. But, I want to ask those parents personally why they opted out. Why did they take up places and not avail of them? They prevented other children from benefitting from the scheme. Essentially, they ruined it for everyone else. No scheme next year. Ta very much!
The apathy I have seen both this year and last year by parents regarding summer schemes, particularly inclusive summer schemes has been a severe detriment to my own child. My son needs to have children to play with over the summer. I can buy a lot of things, but I cannot 'buy' children to play with him, to interact with him. Summer schemes are crucial for his continued development. Neurotypical children have all kinds of opportunities for play and interaction both during the school year and outside of it. Other children do not seek my child out to play with him. His language is delayed, his playskills are only just emerging. Kids generally don't want to know him. Watching him at his summer scheme, however, playing tag and interacting with kids of all ages made my heart soar. The fact that you parents out there (all 12 of you) who decided not to send your children to the scheme has left me feeling confused and angry. I echo my son's words to you - 'no more summer scheme mummy?'
When this particular scheme is not available next year, you 12 parents will no doubt harangue and scream at how your children's needs aren't being met over the summer. If you do, I will be there too, reminding you of your apathy.
Victimhood doesn't work with ASD. Action does. There are many many parents and carers in Northern Ireland who are fighting tooth and nail against this kind of apathy and all the forces out there that keep our children in limbo. I wonder if your voices are part of these. If so, you do a disservice to those parents and carers and invididuals who are actually doing something. Actions speak louder than words and this time, all 12 of you let all of us down.
I propose that summer schemes start charging parents in advance. £50.00 per week should suffice - non-refundable. Funders of these schemes need accountability. Without it, they won't fund. Why would they? Why should precious money be wasted? It's time that some parents acknowledge their tacit participation and contribution to the 'problems' our kids and their families face regarding the issues surrounding having a child on the autistic spectrum.
I fear that across Northern Ireland, there are a lot more than just '12' parents. I suspect a lot of parents conjure up all kinds of excuses for not engaging with what is out there preferring to tar it all with the same brush. Unless we know and experience what is available, how can we make it better? Who will listen to your voice and your child's voice if you don't have the experience of participation?
I hear parents complaining all the time about what there is, or is not available for their child. It is so easy to complain - it is not easy to get your hands 'dirty' and do the work yourself required to change things. Try and fund raise £2,000 per week to run a summer scheme and come to tell me how 'easy' it was. Guaranteed, if parents had to fundraise for summer schemes themselves, their children would definitely be in attendance.
Maybe next June when it is announced this summer scheme and others are no longer available, the unemployed Leader of the scheme will point out to me the names of you 12 parents as you 'demand' more services. I will ask my son to remind you that 'you did it' and get him to ask you 'why?'
To quote the old saying, 'empty vessels make the most noise'.
Thursday, July 29, 2010
1976 Yamaha XS650
I received a package today.
It was delivered from Medicine Hat.
It was a motorsickle.
It was a 1976 Yamaha XS650.
We unloaded it from a truck and looked at it for a bit.
It started on first try. Sweet.
I took it for a spin around the block while wearing flippy floppys and without a helmet.
I looked it over for a few more minutes.
Good looking bike.
Sold.
I wrote the guy a cheque.
I hope it doesn't bounce.
The guy who sold it to me left.
I showed Kristin the new old bike.
I tried to start it for her so she could her it purrrr.
It didn't start.
It didn't start again.
Shit.
It didn't start again.
Shit.
It didn't start again.
I called the guy who sold it to me.
He told me to calm down and take a deep breath.
These ol' bikes need patience.
Turn on fuel. Choke. Starter. Choke. Throttle. Starter. Starter. Throttle. Purrrrrr.
I rode it around the block again...Illegally.
I parked it next to her brother in the garage.
They like each other.
She has no idea what is going to happen her in the next year.
Neither do I.
It was delivered from Medicine Hat.
It was a motorsickle.
It was a 1976 Yamaha XS650.
We unloaded it from a truck and looked at it for a bit.
It started on first try. Sweet.
I took it for a spin around the block while wearing flippy floppys and without a helmet.
I looked it over for a few more minutes.
Good looking bike.
Sold.
I wrote the guy a cheque.
I hope it doesn't bounce.
The guy who sold it to me left.
I showed Kristin the new old bike.
I tried to start it for her so she could her it purrrr.
It didn't start.
It didn't start again.
Shit.
It didn't start again.
Shit.
It didn't start again.
I called the guy who sold it to me.
He told me to calm down and take a deep breath.
These ol' bikes need patience.
Turn on fuel. Choke. Starter. Choke. Throttle. Starter. Starter. Throttle. Purrrrrr.
I rode it around the block again...Illegally.
I parked it next to her brother in the garage.
They like each other.
She has no idea what is going to happen her in the next year.
Neither do I.
Give the Gift of Mercury!
Since today is my birthday and all, naturally, I had to do some shopping! At Walgreens, of all places.
Actually, my trip to Walgreens was not for a gift at all but rather, I was on a mission for flushable wipes, since we seem to have an increased need for them around here with all the potty-training taking place. However, while I was in there, I found that rare but commonly sought after gift: the really unique kind of gift that not just anyone will buy and give to a friend or loved one.
If you have been wanting to give someone the gift of mercury but are finding it difficult to come by (except, of course, to those who are employed in a position where a HAZMAT suit is required) or if you simply desire to give the kind of gift that keeps on giving (and giving and giving and giving - oh yeah, this stuff will not be leaving the body anytime soon!), Walgreens now makes it easy for you with the Walgreens Flu Shot Gift Card!
Brilliant, right?
And the best part? It is the gift of mercury....with no HAZMAT suit required!
This card has flexibility too! According to the Walgreens website, "this card can be redeemed only for administration of (1) Seasonal Flu Vaccination or (1) Preservative-Free Seasonal Flu Vaccination." So you can trade mercury (thimerosal) for any number of other things such as formaldehyde, neomycin (an antibiotic), chick kidney cells, or monosodium glutamate - depending upon the availability of various flu shot brands at your particular Walgreens, of course.
You can look for these gift cards in your local Walgreens stores now or link directly to them above and pre-order online with free shipping! Online availability is limited to their release date in September though.
Pick up a few on your next trip to Walgreens - and don't forget those babies on your gift lists. Thatmercury injection flu shot given to Mommy and Daddy is the same one given to their six-month old baby. After all, one size fits all!
Still in doubt about the ingredients in vaccines? Click HERE for the United States' Centers for Disease Control's list of vaccine ingredients.
Actually, my trip to Walgreens was not for a gift at all but rather, I was on a mission for flushable wipes, since we seem to have an increased need for them around here with all the potty-training taking place. However, while I was in there, I found that rare but commonly sought after gift: the really unique kind of gift that not just anyone will buy and give to a friend or loved one.
If you have been wanting to give someone the gift of mercury but are finding it difficult to come by (except, of course, to those who are employed in a position where a HAZMAT suit is required) or if you simply desire to give the kind of gift that keeps on giving (and giving and giving and giving - oh yeah, this stuff will not be leaving the body anytime soon!), Walgreens now makes it easy for you with the Walgreens Flu Shot Gift Card!
Brilliant, right?
And the best part? It is the gift of mercury....with no HAZMAT suit required!
This card has flexibility too! According to the Walgreens website, "this card can be redeemed only for administration of (1) Seasonal Flu Vaccination or (1) Preservative-Free Seasonal Flu Vaccination." So you can trade mercury (thimerosal) for any number of other things such as formaldehyde, neomycin (an antibiotic), chick kidney cells, or monosodium glutamate - depending upon the availability of various flu shot brands at your particular Walgreens, of course.
You can look for these gift cards in your local Walgreens stores now or link directly to them above and pre-order online with free shipping! Online availability is limited to their release date in September though.
Pick up a few on your next trip to Walgreens - and don't forget those babies on your gift lists. That
Still in doubt about the ingredients in vaccines? Click HERE for the United States' Centers for Disease Control's list of vaccine ingredients.
New 2011 HD Line-up
Harley-Davidson Rolls Out New Models For 2011
Mainline and CVO models released: Other Additions Include New PowerPak Touring Combo and Available ABS for Softail models
MILWAUKEE (July 27, 2010) - A few days ago, at a spanking new LEED-certified resort hotel nestled in a vineyard under an uncharacteristically clear blue Oregon sky, Harley-Davidson unveiled its 2011 motorcycle lineup to the media.
Going for a repeat of last year's ambitious nine-model rollout (that's including the CVO bikes) would not be an option this year, and Harley has understandably decided to play its hand closer to the vest. For 2011, the MoCo has opted to debut a more reasonable 3 models (7 if you include the CVOs, but there are three returning models this year, which usually means no major upgrades).
The first machines to pop up on the PowerPoint presentation last week were the three main-line 2011 models: the all-new Sportster SuperLow, the tweaked XR1200X and the latest addition to the Touring platform, the Road Glide Ultra.
The rest of the line was touched upon briefly, and we learned that the expansive group of 32 machines run the style gamut, from urban brawlers and long-haul touring machines, to street-savvy bobbers and rocking sport roadsters.
Along with the new models, Harley has also added many new accessories and parts including a lot of new cool paint schemes such as metal flake rootbeer and candy apple green.
Harley has finally caught on with the styling of vintage and old school helmets and has added 4 new 3/4 DOT approved helmets as well. Canadian prices are yet to be listed but the American price on these helmets start at $195, which means the cost for us will be somewhere around that $250 range.
Here's the link to Harley Canada to check out all the new 2011 bikes, accessories, parts and clothes yourself:
Harley Canada
Wednesday, July 28, 2010
Tuesday, July 27, 2010
Monday, July 26, 2010
XJ to XS
I've finally found the bike I've been looking for.
A 1976 Yamaha XS650.
I sold the '82 XJ650 to a friend over the weekend and I'm hoping to get the XS650 delivered this week. I found the bike in Medicine Hat on Kijiji.
The bike is in mint condition and the engine has been completely restored. The bike itself has new tires, rings, rebuilt carbs, coils, condencer, points, a new battery, new switches and a lot more. It cost me a few bucks more, but in the end it will be worth it. It has very low km's for a '76 and been well taken care of. I won't need to touch the engine.
These things are bulletproof.
I have a few ideas for the bike already. Street Tracker? Cafe Racer? Bobber? There is a ton of potential for this bike. I'm looking forward to it...
A 1976 Yamaha XS650.
I sold the '82 XJ650 to a friend over the weekend and I'm hoping to get the XS650 delivered this week. I found the bike in Medicine Hat on Kijiji.
The bike is in mint condition and the engine has been completely restored. The bike itself has new tires, rings, rebuilt carbs, coils, condencer, points, a new battery, new switches and a lot more. It cost me a few bucks more, but in the end it will be worth it. It has very low km's for a '76 and been well taken care of. I won't need to touch the engine.
These things are bulletproof.
I have a few ideas for the bike already. Street Tracker? Cafe Racer? Bobber? There is a ton of potential for this bike. I'm looking forward to it...
Friday, July 23, 2010
It's a Giveaway!!! Win "House Rules" by Jodi Picoult
My local TACA chapter has so generously provided me with a copy of House Rules by Jodi Picoult. In keeping with my on-going goal of spreading awareness regarding autism and how it affects entire families, I feel sharing this book is just one small way in which I can reach out to others. This book is a real page-turner - regardless of whether or not the reader has a child with autism. So with that said, let's do a giveaway!
To enter, simply make a comment to this post.
Spam comments (comments left only for the purpose of linking to inappropriate websites) do not count as an entry and will be deleted. All entries will have an equal chance of winning and therefore, multiple entries are not necessary.
Entry into the giveaway is an assumed waiver of anonymity. In other words, if you enter, you are giving permission for your name or blog name to be announced publicly on this site if your entry is the chosen winner.
Giveaway entry deadline is midnight EST July 31st, 2010. Only comments made before that time are valid entries.
A winning entry will be chosen at random August 1st, 2010. The winner will be announced on a separate post on this site.
Winner will have until midnight EST August 2nd, 2010 to reply by email with their name and mailing address to pnewlin@prodigy.net.
Good luck to all!
Thursday, July 22, 2010
Eternal Cumbustion
Just one more.
TROOP 1
This is an Eternal Combustion Troop 1 Full Face Helmet. This lid actually comes from a bike shop in Tokyo, Japan - The bike shop being 'TT & Co.'
It was pinstriped and designed by Sean at Imperial House.
Here are a few links to the above mentioned companies:
Imperial House Blog
Eternal Combustion
TT and Company Motorcycle Custom and Service
TROOP 1
This is an Eternal Combustion Troop 1 Full Face Helmet. This lid actually comes from a bike shop in Tokyo, Japan - The bike shop being 'TT & Co.'
It was pinstriped and designed by Sean at Imperial House.
Here are a few links to the above mentioned companies:
Imperial House Blog
Eternal Combustion
TT and Company Motorcycle Custom and Service
Tuesday, July 20, 2010
Waterton Weekend
So we went to Waterton last weekend...
We cruised on our bikes...
We drank some beers...
We hacked it up...
We ate our ice cream cones...
We got attacked by mountain animals...
Awesome weekend...
Subscribe to:
Posts (Atom)